She has been awake from about 10 AM-7 PM. That is awesome. I was getting encouraged. Then tonight her temp dropped to 91 F. Seriously? Is the new seizure med worth it? Is it even the new seizure med? Is she coming down with something else? Ahhhhhhhhhhhhhh..................
3 comments:
I hope you find some answers soon! It's so hard to pinpoint what variable is causing which symptoms!
Hooray for being awake for so much of the day Ellie. That's more like it.
If you were to go back to the old seizure med, would this dilemna still be here in the same way? Or did it just escalate because of the change in meds?
Yes, ahhhhhhhhhhhhhhhhh.......
There is no old seizure med...she had tried probably 10 different ones a long time ago and none of them worked. So we stopped trying. So we did the Vagel Nerve Stimulator (VNS). (Which is now turned off). So she hasn't been on seizure meds for at least 5 years.
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