(From previous post) At 2 AM Fri her BP was very low and they gave her a dose of IM (intramuscular---in her muscle) Epi. It helped for about 2 seconds.
Her BP was still low.
Things got crazy at this point.
By 2:30 we had about 20 people gathered in and around her room. She was crashing. They gave another dose of IM Epi.
They pushed (gave quickly by pushing a plunger in a syringe instead of running through a pump) a bolus (a dose all at once instead of spaced out) of fluids.
They were on their Vocera (walkie talkie's around their necks) arranging to move her to the main PICU. She was too unstable to keep her over in the PICU Annex in NTU (NeuroScience Trauma Unit).
It took from 2:30 to a little after 3 to get her stable enough to even dare move rooms. People were working and running and checking and pushing and drawing (blood) etc...
They were doing blood pressures every 2 minutes.
Her blood gases during this time were not good. This means she was retaining CO2. You are supposed to breathe off/out the CO2. So they needed to go back up on her bipap settings. We are maxed out on bipap at 20/10. If she needs to go higher they will need to intubate.
I am fine if they need to intubate. She is REALLY sick right now and we don't have answers right now.
Her Calcium and Potassium (Electrolytes) were also low. Potassium has been low all day. They are going to give her some through her IV...but as of 3:30 AM that still hasn't happened.
We made it over to the new bed space in the actual PICU. My heart sank as we pulled up to my least favorite bedspace in the hospital. Bed 15.
It is the bedspace where she had her first hospitalization (other than birth) and it was a doosey! She was 6 months old and was in this space for about a month and a half. She had what we assume (but could never prove) was Airborne Infant Botulism. She came out of that hospital stay with a trach and a vent and a nissen and a gtube and tubes in her ears and a pulse ox and oxygen. When she came home we had to have nurses come and stay with her for 10 hours each night so Jason and I could sleep, since she needed 24 hour care. It was a hospital stay that changes our lives forever. It was big bad and scary then too!
The last time she was in this bedspace (not when she was 6 months old...but a few years ago). It was pretty hard and tramatic for me. This time...my heart sank, but I am OK so far.
It is now 3:45 AM...she is stable and doing OK. Her rash on her face looks better...almost gone. It might come back...but for now it is good.
The nurse is getting ready to do the calcium and potassium.
They are now running epi at a really low slow rate. It has helped her BP stay up for now.
They did an echo of her heart, it looks slow but OK.
Her face looks almost back to normal! Her neck and arms and legs...not so much!
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