Yea!!! We're home. Just a quick trip this time. We went in Sun night and came home Tues afternoon.
She is still needing a scosh (spell check---don't laugh---you try spelling it) of O2. I haven't suctioned her since we left at 2 PM. But will do it before bed.
She has been awake since we got home and doing great. She is very happy to be home.
The only thing she ended up testing positive for was rhinovirus (spell check again)which is just a common cold.
Her platelets are low, so we will go into the Dr. on Fri and have him recheck them.
Otherwise doing great.
On the way home from the hospital we swung by Shriners Hospital and got her second Serial cast on her Right arm. THey are putting casts on to stretch out her muscles which are starting to develop contractures. This past week she gained 25 degrees!!!!! THat is a lot. The OT thinks that we will only need this cast and then we will be able to put her in a splint instead. We will not regain full extention, but it will be pretty good. Last week she was cast at 120 degrees and this week it is 145 degrees. It is quite painful. THink of getting your braces tightened or doing a pilates move for a week straight.
2 comments:
Thinking of you. So glad you're home!
glad you're home!!
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