Thursday, September 23, 2010

Thursday

The rest of yesterday (Wed) she did OK as long as we gave her pain meds regularly.

This morning she is in a little pain, but doing okay with the meds.  She was sleepy this morning, but that's because we forgot to put her bi-pap mask on last night.

Now she is awake.

Her oxygen saturation is in the high 90's.  Before today it has been hanging out in the low 90's.  And her heartrate is in the low 100's (so it is a little elevated due to pain).

I need to look up and see if there is cover for casts on legs so she can have a bath.  When (A) broke his arm I wrapped it in press and seal and that worked pretty well.  But I've heard there are covers you can buy.

Wednesday, September 22, 2010

Pain

Well, yesterday I was in shock at how well she was doing.  Her heartrate stayed low (= low pain).  SHe was not crying or grimacing.  She was awake and even smiled some.

Last night however, the story changed.  Around 6 PM she started grimacing, groaning, crying.  We have been giving her pain meds non-stop since then, but they don't last the full 3 hours before she wants more.  They last about 2.5 hours.  She is getting Lortab and ibuprofen.

Her ears are draining.  Her Left ear has a bloody discharge (not stright blood though) and her Right ear is draining TONS of yellow fluid.  I can change her cotton 5 or more times a day and it is soaked through.  I called ENT this morning about it.  THey said that she probably has an ear infection draining.  To just keep doing the ear drops.

Right now she is comfortable and listening to Mickey Mouse/Disney songs on CD.

It is definitely her leg or legs that are causing the pain, not the ears. 

She has to go back in on Monday to get her casts changed out.  THey will do it at Shriners and they will do it under anesthesia.  They will also cast her feet for new DAFO's (foot braces).

Tuesday, September 21, 2010

Comments

Please leave us comments, I read all of them to Ellie!
(Yesterday) Smiling after waking up from the anesthesia (taken about 4:15 PM)

Yesterday at the hospital--Waking up!

ears

Her L ear was bloody (just a little) this morning and her r ear has been draining yellow fluid (lots) today.
-Mikael

No news is good news

Sorry I dropped the ball on all of Ellie's fans out there.

She is home.

She started waking up for a few minutes at a time yesterday about 3:30.  I told the Nurse and Dr. that I had to leave at 5 to go to my night class.  So if she didn't wake up I could come back at 10:30 PM or she would have to spend the night and I could come in the morning.  It was true.  But it also kicks them in the pants to get us out the door. 

So they got all of the paperwork ready and I worked on waking ELlie up.  Around 4 she really started waking up.  She was fully awake by 5.  She was really not in any pain.  (Her heartrate was not high).  SHe hadn't had pain meds since 11 AM.  So that was surprising to me.

SHe still needed O2 at 4:30 (1/2 liter).  But we had her on room air by 5 PM.  I really didn't feel like that was a long enough trial on room air.  Plus I didn't have my pulse oximeter with me (I wasn't expecting her to come home until the next day).

So I asked for an oxygen tank and I just had her wear it cranked up on the way hoe just to be safe.

Anyway it was 3 minutes to 5.  (Remember I had to leave at 5 to make it to my class).  The ICU dr was trying to track down ENT because he had verbally told me I could go home if she was doing well, but he hadn't written it in his orders.  So, at 3 minutes to 5 the ENT resident came by to check on her.  THe ICU Dr. asked him to sign off on it.  But he said he couldn't, that it would have to be Dr. Park.  We had been trying to get in touch with Dr. park for an hour and a half with no success.  We asked the resident to page him or go ask him in the ER.  THe resident was not very happy about it.  But he did it and we got the go ahead at 5:15.  So we loaded up and left.

(so now you see why I didn't post that we were leaving...we were frantic , then we were rushed, then I went to school).

Ellie was awake and happy and not in pain for the rest of the night.

Today she has been awake and doing well.  Still not a lot of pain, but I am giving her regularly scheduled pain meds anyway so it doesn't get bad and to keep the swelling down.

Her L eye is puffy today.  SHe sleeps with her head to the left and the IV fluids must have puddled there.

Monday, September 20, 2010

Still sleepy

She is still sleeping.  She is snoring a little.  She has the bi-pap off.  But is using a nasal canula on 1 liter of oxygen.  With the O2 she is satting about 97%.  She needs ti wake up if she wants to go home.

" 'Cuz wakin' up is hard to do"


I am trying to wake up.  But it is hard and I am in pain so maybe I don't really want to anyway!!!
Her bloody ear and smacking her lips
How do you like my pink casts???
Resting after surgery.

Head to toe

Well she's done.  SHe is resting peacefully in ICU (is that an oxymoron?).  Everything went fine.

THe Orthopedic Surgeon said he made on small incision behine her ankle and released (cut and extended) 2 tendons there and another incision on the top of her foot.  It didn't sound like either incision was more then an inch or two.  He said it is laying nicely now.  her heel is still a little turned in.  But it would require a lot of surgery and where she doesn't walk, it wouldn't be worth it.  We should be able to get braces on her and get her back in her stander with the releases that he did.

They had to put her bi-pap mask on while she is coming out of sedation.  She was only breathing 7 breaths/minute (which actually isn't that much lower then her normal).  BUt why not giver her a break.  SHe is really sleepy still.

Her L ear is bloody.

Her casts on both of her feet are bright pink.  Which is AWESOME!!!  They will match her wheelchair (which is pink zebra).

SHe is cold---surprise surprise.  34.5 C.

Her heartrate was up in the 90's (high for her).  So they gave her some morphine.

Both Dr.'s said if she wakes up and is doing fine she can go home today.  THat would truly be a first.  I don't think she has ever come home bore the estimated time (they had told me tomorrow).  Usually if it varies from the proposed it is longer by a day or two or more.

Oh--I just saw some peepers  and she has started smacking her lips.  SHe is waking up a little.