So for a few months Ellie's seizures were really bad. We met with many specialists ran a bunch of tests and couldn't figure it out.
She has been on so many seizure meds over the years they just don't think meds will help. Although there is a brand new med that works differently than all the others that we thought about trying. Anyway, we were about ready to start the ketogenic diet (high protein and fat, low carb) which helps about 80% of people with their seizures.
I mentioned that we might be starting the keto diet to her dietician to see if she thought it would be safe with her hypoglycemia, low calories, etc... She thought it would be fine. But she mentioned that another Mom thought that vitamin D helped their child's seizures.
Her seizures all started getting worse around the time that they stopped making the cal-mag-zinc that she had been getting for years. THen we tried Cal-Mag (different brand) and that was awful. Diarrhea and seizures galore.
I asked if there was a brand of liquid calcium she would recommend. She said the only one she knew of was Wellesse at Costco or Walmart. It has Calcium and Vitamin D. So we tried it. We give the normal dose of 15 mL per day. But we give 7.5 in the morning and 7.5 at night.
At the same time we started the Wellesse brand the dietician started having us add an amino acid (protein) powder to her daily formula.
Well her seizures are now almost gone. She might have 1 or possible 2 per day. But it is drastically/dramatically better. Previously she was having upwards of 6-10 per day. And they were big and bad.
So we don't know if it was the New calcium, the Vitamin D, or the amino acid, but hoo-ray!!!
1 comment:
Probably all the above!
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