Metabolics

I spoke with the metabolic geneticist. I had met with him several months ago and he ran some tests trying to figure out her hypoglycemia.

He wanted to run some more blood tests. The results won't be back for several weeks.

I am 99.8% sure we'll be coming home tomorrow. She is doing really well. We have her on 0.12 of a liter of oxygen. We tried taking her off, but her sats drop. THat's Ok, we can go home on O2. Not a big deal.

We'll see how she does overnight.

SHe was really sleepy, grinding teeth, grumpy today. Then she had a BM and now she is REALLY happy. (She hadn't had one since at least Monday). She is smiling and signing more.

We watched Hannah Montana (one of her favorites).